SCPE2 - Surveillance of cerebral palsy in europe 2: support for research and training activities (SCPE2) (LIFE QUALITY) (2002-01-01 - 2005-06-30) (»add to infobox)

Claude FEUERSTEIN, Maria Giulia TORRIOLI, Owen HENSEY, Franco FALCINI, Georg SANDBERGER, Michael CROWLEY, Margareta AHLQVIST, Mireille BLANC, Mette MADSEN, James FOX, Digby HARRIS, Pierre ESPINASSE, Anne Marie PATTON, Alf MEBERG

UNIVERSITE JOSEPH FOURIER GRENOBLE 1 (FR714 - Isère) (France), CATHOLIC UNIVERSITY OF SACRED HEART (IT603 - Roma) (Italy), CENTRAL REMEDIAL CLINIC (IE002 - Dublin) (Ireland), CENTRO PER LE DISABILITA NEUROMOTORIE INFANTILI (IT405 - Bologna) (Italy), EBERHARD-KARLS UNIVERSITAET TUEBINGEN (DE142 - Tübingen, Landkreis) (Germany), ENABLE IRELAND CORK - THE PHYSICAL DEVELOPMENT REGISTRY (IE007 - South-West (IRL)) (Ireland), GOETEBORGS UNIVERSITET (SE052 - Goeteborgs Och Bohus Laen) (Sweden), INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) (FR623 - Haute-Garonne) (France), NATIONAL INSTITUTE OF PUBLIC HEALTH (DK) (DK001 - København og Frederiksberg kommuner) (Denmark), UNIVERSITY OF LIVERPOOL (UK840 - Merseyside) (Great Britain), UNIVERSITY OF NEWCASTLE UPON TYNE (UK132 - Tyne And Wear) (Great Britain), UNIVERSITY OF OXFORD (UK523 - Oxfordshire) (Great Britain), UNIVERSITY OF ULSTER (UK622 - Devon) (Great Britain), VESTFORD COUNTY CENTRAL HOSPITAL (NO033 - Vestfold) (Norway)

During the last decade, changes in prenatal care across Europe have resulted in a fall in neonatal mortality- but the effect on the rate of Cerebral Palsy (CP) remains uncertain. Although CP is the commonest physical disabling disorder in childhood, it occurs in only 2 per 1000 live births. And there is still a debate concerning the aetiology of this condition, is it more related to adverse prenatal or prenatal events? Large populations are needed, therefore, to assemble sufficient cases. 14 centres in 9 countries have done initial work in developing a European database of children with CP. It has been recognised that using text guidelines alone is insufficient to achieve data harmonisation. A reference manual using videotape material and supporting next with translation will be developed, evaluated and used for training at local level. New cases will be added and the database will be used to support research projects, and to monitor CP trends in Europe. Individual centres already fund routine data collection. Individual centres already fund routine data collection.

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