IQOD - International health-related quality of life outcomes database (LIFE QUALITY) (2001-05-01 - 2003-10-31) (»add to infobox)

Katrin CONWAY, Jordi CAMI, Margareta AHLQVIST, Dominique DUBOIS, Albert WU, David HARRISON, John WARE, Marc DECHAVANNE, Olivier CHASSANY

MAPI RESEARCH INSTITUTE (FR716 - Rhône) (France), FUNDACIO IMIM (ES511 - Barcelona) (Spain), GOETEBORGS UNIVERSITET (SE052 - Goeteborgs Och Bohus Laen) (Sweden), JANSSEN PHARMACEUTICA NV (BE213 - Arr. Turnhout) (Belgium), JOHNS HOPKINS UNIVERSITY (US20 - Maryland) (Usa), MAPI VALUES (UKD22 - Cheshire CC) (Great Britain), QUALITYMETRIC INC (US39 - Rhode Island) (Usa), UNIVERSITE CLAUDE BERNARD LYON 1 (FR716 - Rhône) (France), UNIVERSITE DE PARIS VII DENIS DIDEROT (FR101 - Paris) (France)

IQOD Group proposes to develop a database that will allow psychometric evaluation of cross-cultural equivalence of linguistically adapted versions of 3 Health-related Quality of Life (HRQL) instruments and determine expected scores for different populations (i.e., cross-cultural, clinical, and socio-demographic). Also, instruction manuals will be developed to standardize administration and interpretation. This research is crucial for assessment of health status across Europe. Data may not be aggregated across studies or scores compared from different populations unless instruments are culturally adapted and instruments administered and scores interpreted in the same manner. Also, reference values are very useful in interpreting scores and to make comparisons across different populations. Currently, there are only a few culturally adapted HRQL instruments for use in Europe. The resulting culturally adapted instruments, reference values, and instruction manuals will allow cross-national comparisons of HRQL in Europe, in health surveys, clinical practice, and clinical research providing standardized, valid, and useful results.

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